The other night, I watched The Diving Bell and the Butterfly – a film based on a memoir written by a man suffering from Locked-in syndrome. Locked-in syndrome is a condition in which a patient has full awareness but cannot move due to complete paralysis of all voluntary muscles in the body except for the eyes.
At the age of 43, Jean-Dominique Bauby, editor of fashion magazine Elle, had a massive stroke. He woke up 20 days later to discover that he was almost completely paralysed. The determined French journalist wrote his memoir by memorising what he wanted to say then dictating the text to a transcriber by blinking his one functioning eyelid (a system known as partner assisted scanning). It took him 10 months (at an average of four hours a day). He died two days after its publication.
I don’t know whether I felt depressed or inspired after watching the movie. This man had everything taken from him – his career, his partner (who abandoned him after the stroke), his health, his speech, and his independence. Understandably, he expressed his desire to die. But then he realised that, apart from his left eye, two other things were not paralysed – his memory and his imagination. He went on to write a bestseller and set up a Locked-in syndrome association. He had lost so much but the spirit within him was still able to create something extraordinary. And then he passed away.
Our mortality is something we are born with. Sometimes, I think we ignore the fact that this lifetime will not last forever. We get so caught up in routine and obligation that we are often oblivious to the beauty and wonder of the world around us. We become disheartened and apathetic, or frustrated and angry, so gratitude and appreciation seem irrelevant.
Life is short. So, we should do the things that make us feel thankful to be alive. Last week, I took my mother to see the New York Spirit of Gospel. The vocalists astounded us with their talent. They encouraged us to shake off our self-consciousness, get up off our seats and dance, clap and sing along. The performance was all the better because we joined in.
We spend so much time passively watching the world do its thing. But it’s only when we actively participate that we come alive. So, get out there and really live. Life is a gift if that’s how you choose to see it.
The world is full of miracles and adventure, blessings and delight. And there are so many ways to acknowledge this. Money or mobility don’t have to be an issue. You can travel to foreign lands or visit spectacular spots within your own country. You could walk through whispering forests and across the backs of ancient mountains. Or simply allow the deep tones of a cello to awaken your senses.
Embrace life and each other. Laugh long and hard and often. Learn how to surf or bake or speak Spanish. Tell someone you love them. Admit to your fears and share your passions. Swim in lakes and oceans. Feel the earth’s water on your naked skin. Dance. Cry. Sing. Love. Live.
Images: http://favim.com/image/31398/; http://xaxor.com/photography/25467-appreciating-life-photography.html